Farhana Badar ( Shaukat Khanum Memorial Cancer Hospital & Research Center, Lahore, Pakistan )
Madam, in response to a recent Editorial titled \\\'The role of a cancer registry in a health-care system\\\' (Vol. 68, No. 5, May 2018), I would like to point out the existence of two population-based registries that have been recognized by the International Agency for Research on Cancer (IARC).
First, the regional registry of the Karachi South district, in Sindh, was established and managed for several years by Dr. Yasmin Bhurgri. This registry reported its data to IARC and the statistics were published in CI5, Volume 9.1 However, owing to the sudden demise of Dr. Bhurgri in 2012, the registry stopped functioning. Recently, professionals in Karachi are attempting to set-up a cancer registry for the city of Karachi (unpublished information).
Secondly, another registry in Pakistan is the Punjab Cancer Registry (PCR), which was set-up through a collaborative effort in Lahore in 2005, with the support of the Shaukat Khanum Memorial Trust.2 The PCR is registered with the Societies Registration Act, 1860, of Pakistan and is also a member of the International Association of Cancer Registries, France. For over a decade, data have been captured on a prescribed data collection form, in accordance with the minimum data items required for cancer registries.3 Extensive reports on cancer incidence in the district of Lahore have been published and show results by gender, age-group and tumour type.4,5
The author appears to be unaware of the systems running in Pakistan and it is concerning that this was missed in the editorial review as well.
Disclaimer: None to declare.
Conflict of Interest: None to declare.
Funding Sources: None to declare.
1. Curado MP, Edwards B, Shin HR, Storm H, Ferlay J, Heanue M, et al, eds. South Karachi, Pakistan. The Narratives and The Maps. Cancer Incidence in Five Continents Vol. IX-IARC Scientific Publication No. 160. Lyon, France: International Agency for Research on Cancer. [Online] 2007 [Cited 2018 May 14]. Available from URL: http://www.iarc.fr/en/publications/pdfs-online/epi/sp160/CI5vol9-11.pdf.
2. Punjab Cancer Registry. SKMCH & RC, Lahore, Pakistan. [Online] 2011 [Cited 2018 May 14]. Available from URL: http://punjabcancerregistry.org.pk.
3. MacLennan R. Chapter 6-Items of patient information which may be collected by registries. In: Jensen OM, Parkin DM, MacLennan R, Muir CS, Skeet RG, eds. Cancer Registration: Principles and Methods-IARC Scientific Publications No. 95. Lyon, France: International Agency for Research on Cancer. [Online] 1991 [Cited 2018 May 14]. Available from URL: http://www.iarc.fr/en/publications/pdfs-online/ epi/sp95/sp95-chap6.pdf.
4. Badar F, Mahmood S, Yusuf MA, Sultan F. Epidemiology of cancers in Lahore, Pakistan, 2010-2012: a cross-sectional study. BMJ Open 2016. Available from URL: http://dx.doi.org/10.1136/bmjopen-2016-011828.
5. Badar F, Mahmood S. Epidemiology of cancers in Lahore, Pakistan, among children, adolescents and adults, 2010-2012: a cross-sectional study. BMJ Open 2017. Available from URL: http://dx.doi.org/10.1136/bmjopen-2017-016559.